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Privacy Policy
This privacy notice tells you what to expect when Myasthenia Gravis Association (MGA) collects personal information. The terms of this statement may change, so please check it from time to time. How do we collect information?We obtain personal information from you when you enquire about our activities, register with us, sign up to the website, make a donation to us, ask a question about Myasthenia Gravis or otherwise provide us with personal information. We may also receive information about you from third parties, for example from our service providers or from a friend who wants to tell you about our websites or the fundraising activities we carry out. What information do we collect?The personal information we collect might include name, date of birth, email address, postal address, telephone number, occupation and health information if you tell us about your Myasthenia Gravis or that of a friend or relative.
As part of this, we may analyse the personal information we collect to create a profile of your interests and preferences so that we can contact you in the most appropriate way and with the most relevant information. Where relevant, we may also assess your personal information for the purposes of fraud and credit risk reduction. If you enter your contact details in one of our online registration forms, we may use this information to contact you even if you don’t "send" or "submit" the form. We will only do this to see if we can help with any problems you might be experiencing with the form or with our websites. Myasthenic NursesIf you contact the MG Specialist Nurses, either through MGA or directly, you may choose to provide details of a personal nature. The MG Specialist nurses are governed by the NHS, please see the NHS privacy statement https://www.nhs.uk/InformationServiceForParents/pages/privacy-policy.aspx Visitors to our websitesWhen someone visits www.mga-charity.org we collect standard internet log information and details of visitor behaviour patterns. We do this to find out things such as the number of visitors to the various parts of the site. We collect this information in a way which does not identify anyone. We do not make any attempt to find out the identities of those visiting. We will not associate any data gathered from this site with any personally identifying information from any source. If we do want to collect personally identifiable information through our website, we will be up front about this. We will make it clear when we collect personal information and will explain what we intend to do with it. User anonymity and personal informationLog files are maintained and analysed of all requests for files on this website's web servers. Log files do not capture personal information but do capture the user's IP address, which is automatically recognised by our web servers. Aggregated analysis of these log files is used to monitor website usage. These analyses may be made to available to Myasthenia Gravis Association staff to allow them to measure, for example, overall popularity of the site and typical user paths through the site. Except as stated already, Myasthenia Gravis Association will make no attempt to identify individual users. You should be aware, however, that access to web pages will generally create log entries in the systems of your ISP or network service provider. These entities may be in a position to identify the client computer equipment used to access a page. Such monitoring would be done by the provider of network services and is beyond the responsibility or control of Myasthenia Gravis Association. Myasthenia Gravis Association will make no attempt to track or identify individual users, except where there is a reasonable suspicion that unauthorised access to systems is being attempted. In the case of all users, Myasthenia Gravis Association reserves the right to attempt to identify and track any individual who is reasonably suspected of trying to gain unauthorised access to computer systems or resources operating as part of Myasthenia Gravis Association web services. As a condition of use of this site, all users must give permission for Myasthenia Gravis Association to use its access logs to attempt to track users who are reasonably suspected of gaining, or attempting to gain, unauthorised access. All log file information collected by Myasthenia Gravis Association is kept secure and no access to raw log files is given to any third party. E-newsletterWe gather statistics around email opening and clicks using industry standard technologies including clear gifs to help us monitor and improve our e-newsletter. Use of cookies and log files by the MGACookies are small text files that are placed on your computer by websites that you visit. They are widely used in order to make websites work, or work more efficiently, as well as to provide information to the owners of the site. Log files are maintained and analysed of all requests for files on this website's web servers. Log files do not capture personal information but do capture the user's IP address, which is automatically recognised by our web servers. Aggregated analysis of these log files is used to monitor website usage. These analyses may be made to available to Myasthenia Gravis Association staff to allow them to measure, for example, overall popularity of the site and typical user paths through the site. Except as stated already, Myasthenia Gravis Association will make no attempt to identify individual users. You should be aware, however, that access to web pages will generally create log entries in the systems of your ISP or network service provider. These entities may be in a position to identify the client computer equipment used to access a page. Such monitoring would be done by the provider of network services and is beyond the responsibility or control of Myasthenia Gravis Association. Myasthenia Gravis Association will make no attempt to track or identify individual users, except where there is a reasonable suspicion that unauthorised access to systems is being attempted. In the case of all users, Myasthenia Gravis Association reserves the right to attempt to identify and track any individual who is reasonably suspected of trying to gain unauthorised access to computer systems or resources operating as part of Myasthenia Gravis Association web services. As a condition of use of this site, all users must give permission for Myasthenia Gravis Association to use its access logs to attempt to track users who are reasonably suspected of gaining, or attempting to gain, unauthorised access. All log file information collected by Myasthenia Gravis Association is kept secure and no access to raw log files is given to any third party. This website does not store any information that would, on its own, allow us to identify individual users of this service without their permission. Any cookies that may be used by this website are used either solely on a per session basis or to maintain user preferences. Cookies are not shared with any third parties.
YouTube cookiesWe embed videos from our official YouTube channel using YouTube’s privacy-enhanced mode. This mode may set cookies on your computer once you click on the YouTube video player, but YouTube will not store personally-identifiable cookie information for playbacks of embedded videos using the privacy-enhanced mode. To find out more please visit YouTube’s embedding videos information page. Access to personal informationMGA tries to be as open as it can be in terms of giving people access to their personal information. Individuals can find out if we hold any personal information by making a ‘subject access request’ under the Data Protection Act 1998 (for which we may charge a small fee) . If we do hold information about you we will:
To make a request to the MGA for any personal information we may hold you need to put the request in writing addressing it to us to the address provided below. If you agree, we will try to deal with your request informally, for example by providing you with the specific information you need over the telephone. If we do hold information about you, you can ask us to correct any mistakes by, once again, contacting the Information Governance department. Disclosure of personal informationWe will not disclose personal data to third parties . However we do use anonymous data for statistical review purposes that could be of benefit to medical researchers looking a patterns of myasthenia (age, geography, occupation, gender). Links to other websitesThis privacy notice does not cover the links within this site linking to other websites. We encourage you to read the privacy statements on the other websites you visit. Changes to this privacy noticeWe keep our privacy notice under regular review. This privacy notice was last updated on 2nd October 2012. How to contact usRequests for information about our privacy policy can be emailed to
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